March 29, 2011

  • It's late

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    It's late,  I am trying my best to update here when I can. What little time I do have I find myself falling asleep.(like right now)

    It started Friday night the day after they did the spinal tap. We were getting Laura ready in the wheel chair to take her outside for a walk in the sun. Next thing I knew she looked like she was about to get sick and she was pointing to the bed. she had a really bad dizzy spell. Well this dizzy spell turned into a headache that has lasted for 3 days now.

    Long story short, She had a CT scan this morning which showed a bleed in her brain. It is close to where the stroke took place,same area. The doctors are watching her closer now, she is on Morphine and she is hooked up to iv's and has a oxygen monitor, (aka E.T. finger). She still has the headache but it is not as bad with the pain medicine. She went from a 10 being the worst pain, to a 5.

    She also has big leg wraps on that are filling and releasing air to keep clots from forming in her legs. The doctors say they want her to just rest in bed for the next two days and they will do another CT scan on Thursday to check the area of the bleed. We are praying it will be less and reabsorbed. They switched her medicine and took her off the blood thinner and other pain meds she was on which could have contributed to it.

    She is still talking, and still getting stronger on the right side of her body. Today she lifted her arm up for me and smiled. She is loving the cards and gifts she is getting from friends and family,every time something shows up she smiles. It really is helping her to know so many care about her. I have given her countless kisses from all who ask to give her one for them... it was quite comical this morning when i gave her a bunch, she was laughing because i was naming people off and kissing her for each person I named.

     She is so sweet through all this it really breaks my heart.I will not let her see me that way.You know the screaming internally, dropping to my knees, stabbing in the heart me. I am not always like this, it actually comes on very sporadic and sudden, then I have to take a walk and Pray.  I know without prayer and Jehovahs help I would not be getting through this as well as I have been. 

     

     

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     I think of the faces I see in the elevator every day, the other parents who are here that we have come to know passing in the hall. It goes almost unspoken, we just all know what each other is going through. The Helicopter takes off and lands many times a day,it is right out our window. Since  this is a childrens hospital, I can't help but wonder what happened,who is next I will meet in the elevator,at the cafeteria,or could possibly be moved to the room across from us,or next to us. I long for the day there will be no more hospitals needed.No pain. No suffering. ~Revelation 21:4

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    I look out the window and also see a big river,which just a few days ago realized it was the Mississippi river(Laura told me), and the HUGE boats are actually SHIPS coming up from the ocean. Very warm weather and almost every day we have been here it has been 70 degrees and up, sunny with the exception of 2-3 days when it rained some of the day.The nice weather I believe has also helped us get through each day.

     

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    I can't wait to get Laura back out in the sun, and MOST of all get her home. I can't wait to tuck all my kids in bed at night,under one roof and sleep in my own bed. It's not easy being here...

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    Although Marina knows how to lighten things up a bit . That lizard is REAL!

     

     

    ~ Thankyou all for all your prayers and support. Thankyou to my family, and Marks family for all you have done and are continuing to do,we will all be home soon.....I can see it now.

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    This was my view the other night when the moon was bright and very LARGE. Just beautiful. I am so thankful to know what I do.

Comments (1)

  • dear johanna  i think of you every day and can not imagine what you are going through  i am so sorry  words cannot express.   i know Jehovah is with you all draw on His strength  hope things start getting better for you love to you and you're  family.  if it helps  your an inspiration to others  thins have been not so right and your strength encourages me to fight this world even harder and push on to Jehovah  thank you and my heart is with you   love  martha

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