Lauras in a recovery room now. She is getting quite bossy. For instance I was trying to figure out how to work the dvd… she kept saying just get the nurse. I of course did not want to seem like I had no idea what I was doing (which I really had no idea what I was doing of course) . She grabs the cord to the nurse call remote and yanks it over to her and pushes the button..they come in and she says “my mom don’t know how.” 

I can’t say I mind at all. It’s a good thing.  LOL

Have no idea still a discharge date, BUT I think as soon as she is able to get up out of bed, she will want to leave. she has not been out of bed yet. The nurses come in every so often to raise the head of her bed just a tad to eventually get her sitting upright.

Soon!! I just know it!

Another note, there is a boy who is from Kingston who had the SAME condition as Laura and the SAME surgery as Laura by the same Doctor. (who ALSO are Jehovahs Wittnesses) He and his family are coming up tonight to visit with us. They are a spanish family. Actually the Doctors said they learned from this boy and that is why they ended up doing MORE procedures then expected at first on Laura. This boy they said ended up having to come back for a second round. (they took care of it all with Laura at once)  This condition is so rare the doctors and still learning as they go . And I will know more tonight but from what I hear, it also presented in this young boy the exact same way as it presented with Laura. ( A-typical) Affecting the same vessels. I did hear the surgeons say they almost don’t want to call it Moya moya now, because it is not presenting the “normal” way for Moya moya. But what has happened to the vessels IS what happens with Moya moya. (Moya moya typically affects the entire brain instead of just one or two vessels.)

Hopefully I will have some pictures of our visit later.

YEEE

Haaaaa!

Isaiah 41:10-13( Do not be Afraid )

Psalms 27:14 ( Hope in Jehovah and be strong)

Psalms 55:22 ( Throw your burden upon Jehovah)