Day: April 4, 2009

  • we know now!

    we finally have an answer!!!!

    remember i was talking a while back on how Jonathan kept getting a high fever? Well,guess what we finally got fed up with it.Since October of last year,he has ran a fever every 2 weeks of 105 degrees that lasts for 5 days. we said today ENOUGH!!!

    so we took him to a different ER today while he had the fever,intentionally not giving him meds at that point,just til we got him there. we explained to them how he has been through so many tests over the last 4 months, we started from the beginning..(very good doctor) we told him about the numerous blood tests, he went to a GI specialist…was tested for rheumatoid arthritis,lupus and a whole shabang of autoimmune things the past few months..all of them coming back normal.I have not been talking about it because i was trying not to dwell on it.(i think hoping every time he had the fever it would be the last one and he would be better.)

    WELL……………after a ton more tests today,get this, he is 3 and he has MONO!!!!

    we are in the process now of getting set up with a JIDS ( juvenile infectious disease specialist) in Syracuse University Hospital.

    Finally!!!!!!!!! an answer!!

    heres some pictures from today….a long day in the ER

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April 2009
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